
Thyroid Decision Aid
Information to support you make a decision regarding your thyroid nodule
This website is for people who have a thyroid nodule, where there is a chance it could be a low-risk thyroid cancer.
We understand this might be a time of uncertainty, and you may have some questions.
This website is a decision aid – to help you decide what treatment best fits with your preferences and values. It will provide information to help think through the risks and benefits of the treatment options.




Some questions you may have before using this decision aid:
Who is this website for?
This website is a decision aid designed specifically for patients who may have a low-risk thyroid cancer (to see what this means, click on the section below).
If you were invited to review the information on this website by your surgeon or endocrinologist, then it means this information is relevant for your care.
If you do not have a low risk thyroid cancer, this decision aid is not relevant for you. This is because for some types of thyroid cancer, it is recommended that the whole thyroid is removed. These cancers are usually larger, and may have spread beyond the thyroid gland. Your surgeon or endocrinologist will have advised you that your condition means the whole thyroid must be removed. If this is your circumstance, the information on this website is not directly relevant to you.
What is a low-risk thyroid cancer?
Many thyroid cancers grow slowly, and have a low risk of spreading outside the thyroid gland. Because of this, there is a low chance that they will cause serious harm to a person. Also, this means that there may be a choice of how the cancer is treated.
In general, a low risk thyroid cancer is:
- Small (less than 2-3 cm in size)
- Completely inside the thyroid gland
- Without any signs of spread to local lymph nodes
What is a decision aid?
You can use a decision aid to help you make a decision about your health in consultation with your doctor. This approach is called shared decision making.
The goal of a decision aid is to:
- Provide information about your treatment options
- Help you think through what is important to you
- Help you record your thoughts and values (so you can share them with your doctor or others)
A decision aid is not going to make a decision for you. It is not going to direct you to choose a particular option.
Why do I need a decision aid?
If you have a low risk thyroid cancer, there is often a choice about the treatment you have.
Each choice has its own experience, benefits, and potential risks, and it is not clear that one option is definitely better than others.
Your surgeon will provide clear information regarding these options, and may suggest to you a recommended course of action.
However, your preferences are also important.
This decision aid will explain the different options available for your initial treatment, and help you to make an informed decision, along with your surgeon.
More information about this website
The information on this website is part of a research study at the University of Newcastle and the Hunter Medical Research Institute. This means that you will be asked to provide feedback on the content of this website and whether it was useful. Your feedback will be used to develop this resource for future patients.
The information here is designed to help you make treatment decisions about your thyroid nodule which could be cancer.
It has been designed to be used after an initial consultation with your surgeon or endocrinologist.
You may already have been given a double-sided paper-based decision aid during your consultation and given feedback on this paper.
The information on this website is of a general nature, and may not exactly apply to your situation. Therefore, it is best viewed as a starting point for a discussion with your surgeon or endocrinologist, who would be able to tailor this information to your specific circumstance.
The information on this website regarding the risks and benefits of various treatment options is not exhaustive. There are many rare complications of any medical procedure. This website provides general information on some common and important risks and benefits to assist you with your decision making process. However, it is essential that you specifically discuss any procedure, its risks, and benefits and how they might apply to you, with your surgeon or endocrinologist.
This information is not intended to form the basis for informed consent and should not be used as such.
The information on this website has been developed by clinicians working as part of the Hunter New England Thyroid Cancer Multidisciplinary Team, based at John Hunter Hospital.
For clinicians
This website forms the second part of a two-part Decision Aid, which has undergone extensive Alpha and Beta testing with an Australian population, in accordance with International Patient Decision Aid Standards (IPDAS). The research supporting this development has been published.
Part 1 of this Decision Aid is a paper-based sheet designed to be used within the context of a clinical consultation. This website is a secondary adjunct to the written material.
- To download the paper-based decision aid for use in your practice, click here.
We welcome feedback on this resource.
Acknowledgements

The development and initial testing of this project was funded by the Cancer Institute NSW through the NSW Regional Cancer Research Network.



